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In Memory of
Kimberly Lynn Davis

August 22th, 1985 ~ June 28th, 2022

Kimberly Lynn Davis, 36, of Trussville, Alabama, passed away on Tuesday, June 28, 2022.

Kimberly was born on August 22, 1985, in Birmingham, to Phil and René Davis. As a child, she lived in Birmingham before moving to Trussville in 1999. She was a 2006 Clay-Chalkville High School graduate and went to the United Cerebral Palsy Adult Program, LincPoint, for several years. Kimberly was a beautiful, loving, and silly girl. Her smile and belly laughs would make the whole room giggle. She could say more with her eyes than most people can with words. When Kimberly was three, she was diagnosed with Rett syndrome. It affected every aspect of her life, but she was such a fighter and loved her family and friends so very much.

Kimberly is preceded in death by her brother, Joshua Davis; grandparents, Reverend Joe & Gertrude Davis of Pinson, and J.T. (Jake) Self of Gardendale.

She is survived by her parents, Phil & René Davis of Trussville; grandmother, Genell Dodd of Trussville; brother and sister-in-law, Matthew & Cynthia Davis of Clinton, North Carolina; sister and brother-in-law, Nicole & Dewayne Jenkins of Trussville; nieces and nephews: Allie & Amelia Jenkins of Trussville, and Charlotte, Kaden, & Mason Davis of Clinton, North Carolina; special friend, Carlina Burkett of Springville; and numerous aunts, uncles, cousins and friends.

The family would like to thank several people for their wonderful care over the years: Dr. David Glasgow, Dr. Alan Percy, Mrs. Jane Lane, RN, BSN, Suzanne Geerts, B.S, M.S., R.D, and the wonderful staff of Benjamin Russell Children’s Hospital and UAB Hospital.

In lieu of flowers, the family requests that donations be made in Kimberly’s name to either the Suki Foundation for Rett Syndrome at or the International Rett Syndrome Foundation, 4600 Devitt Drive Cincinnati, OH 45246 or

Funeral arrangements are being directed by Deerfoot Memorial Funeral Home of Trussville. The visitation will be on Saturday, July 2, 2022, from 11:30 a.m. to 1:00 p.m. at Northpark Baptist Church in Trussville. The funeral will start at 1:00 p.m. Immediately following the service, the interment will be at Liberty-Minter Cemetery in Morris.

Kimberly will be missed so much by her family, friends, and loved ones. She was so very special! When you think of her, remember her beautiful smile. Please visit Kimberly’s website for more information on Rett syndrome and leave a special memory on her guest book.

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16 entries.
MawMawDodd MawMawDodd wrote on August 19, 2022 at 1:09 pm
Kimberly, MawMaw misses you so much, I know you're God's Angel now but we still miss you. I miss you trying to give me tongue sugar and I miss your beautiful smile. I love you
Robert Clopton Sr. Robert Clopton Sr. wrote on July 2, 2022 at 8:22 pm
Our most heartfelt condolences to the family on the passing of Kimberly. May you find "peace' in the beautiful memories you shared.
Becka from gulf shores Alabama Becka from gulf shores Alabama wrote on July 2, 2022 at 7:54 pm
I wish I could give you a big hug.. My 12 year old grandson is in heaven with you and he will show you all around heaven. He use to have brain cancer but you and Blake are healed forever.. I love you both...see yall real soon... I am Blake's granny...
Rita Rita wrote on July 1, 2022 at 9:56 am
I loved your smile ❤️💞. Your beautiful eyes spoke so much . You are loved and will be missed.
Kathy Early Kathy Early wrote on June 30, 2022 at 10:25 pm
It was not quite a year ago I visited your Kimbo's Korner to check in & wish you happy birthday. I've thought of you & your sweet family so often over these years. I cherish all our memories together. I'll aways have the images of your sweet smile, laugh, and bright eyes as you so beautifully communicated your love. You captured my heart when I first met you when you were just starting preschool. Our friendship has been so special. You and your loving family are extraordinary and I'm so blessed to know all of you. You made your world a better and brighter place. You will be missed beyond measure but your love lives on in all who knew you. You are a precious gift. You have truly touched so many hearts.💝 ❤️💜
Katelyn Hale Katelyn Hale wrote on June 30, 2022 at 9:12 am
Kimberly, my Rett Sister, you will be missed so very much. You are free from Rett Syndrome now and flying with the other Angels in Heaven. We will think of you often and pray for your family daily. I was so blessed to have you in my life, especially when we lived in Birmingham. We will all see each other again one day. We love you and your family, love Katelyn Hale.
Lisa Shaw Lisa Shaw wrote on June 30, 2022 at 2:44 am
Your beautiful smile will be with me forever! Fly high sweet girl!!
Sarah Richardson Sarah Richardson wrote on June 29, 2022 at 11:10 pm
Words cannot express how hurt I’m to see you go . If only love was enough to keep you here on earth. Kimberly! You will be missed.
Kathy Early Kathy Early wrote on August 22, 2021 at 5:51 pm
Kimberly, I was thinking about you today and so enjoyed looking at your lovely photos! Some of them were a trip down memory lane for sure. I hope you & your family are well! Happy Birthday 🎂—-💗you
Cindy Self Cindy Self wrote on June 2, 2021 at 6:00 pm
Hi Kimberly, I was privileged to witness your eye interaction with your Mom recently while eating at a restaurant in Trussville. At the time, I didn’t know you had the very rare Rett Syndrome. I have a daughter with a Masters Degree from UAB and she did a concentration in Autism. She lives and teaches in Mississippi, and will love hearing about you. I read on the website your parents gave me that Rett is considered in the Autism Spectrum. Thank you for making me aware of Rett, and thank you most for being able to witness you talking with your Mom. I could see you asking for sweet tea because your eyes said it all!
Victoria Wilkins Victoria Wilkins wrote on May 26, 2021 at 1:46 am
Hi, Kimberly! I met your awesome Dad tonight while picking up my daughter at gymnastics tonight; I noticed your “Rett Syndrome” tag and couldn’t help but strike up a conversation! Our daughter, Amelia, is two and has CHARGE Syndrome. We really enjoy meeting other rare syndrome families. I hope to meet you in person sometime soon! Your site is awesome. I hope you can give me some tips on how to run mine, as I just became the AL state liaison for the Charge Syndrome Foundation. Thanks so much for sharing your story!! Proud to count ourselves amongst families like yours.
Rosetta Mclaurin Rosetta Mclaurin wrote on November 1, 2019 at 3:03 pm
Good morning Kimberly!! It’s really cold today and was even more frosty last night, did you enjoy Halloween? Christmas will be here before you know it ,are you as excited about it as I am? I hope to someday meet you in person you have such a beautiful smile! I worked with your mom and I just love her!!! You are so blessed to have such loving parents ! Well I’m going to go now but I will be checking back on you . Love Rose❤️
Peggy Self Peggy Self wrote on October 15, 2019 at 1:45 pm
Hey Kimberly! I love you much!
Rosetta McLaurin Rosetta McLaurin wrote on November 26, 2018 at 3:19 am
Hello sweet Kimberly I hope you had a great Thanksgiving! Xoxo
Amelia Jenkins Amelia Jenkins wrote on November 12, 2018 at 3:24 pm
Hey Kimbo I love you! Have an awesome day!
Allie Jenkins Allie Jenkins wrote on November 12, 2018 at 3:16 pm
Have a Great Day! Kimmy, I love you!

About Rett Syndrome

Rett syndrome is a unique postnatal neurological disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys.

Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or non-specfic developmental delay.

Rett syndrome is caused by mutations on the X chromosome on a gene called MECP2. There are more than 200 different mutations found on the MECP2 gene. Most of these mutations are found in eight different “hot spots.”

Rett syndrome strikes all racial and ethnic groups, and occurs worldwide in 1 of every 10,000 female births. Although Rett syndrome can affect males, the incidence in males is not known.

Rett syndrome is not a degenerative disorder.

Rett syndrome causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

Rett syndrome symptoms appear after an early period of apparently normal or near normal development until six to eighteen months of life, when there is a slowing down or stagnation of skills. A period of regression then follows when she loses communication skills and purposeful use of her hands. Soon, stereotypical hand movements such as handwashing, gait disturbances, and slowing of the normal rate of head growth become apparent. Other problems may include seizures and disorganized breathing patterns while she is awake, an abnormal side-to-side curvature of the spine (scoliosis), and sleep disturbances. In the early years, there may be a period of isolation or withdrawal when she is irritable and cries inconsolably. Over time, motor problems may increase, but in general, irritability lessens and eye contact and communication improve.

Rett syndrome is confirmed with a simple blood test to identify the MECP2 mutation. However, since the MECP2 mutation is also seen in other disorders, the presence of the MECP2 mutation in itself is not enough for the diagnosis of Rett syndrome. Diagnosis requires either the presence of the mutation (a molecular diagnosis) or fulfillment of the diagnostic criteria (a clinical diagnosis, based on signs and symptoms that you can observe) or both.

Rett syndrome can present with a wide range of disability ranging from mild to severe. The course and severity of Rett syndrome is determined by the location, type and severity of her mutation and X-inactivation. Therefore, two girls of the same age with the same mutation can appear quite different.

Rett syndrome in males is rare, but does occur at low prevalence. With advances in research, diagnosis and increasing awareness we now have a better understanding of how a mutation in an X-linked gene leads to Rett syndrome in males.

Rett syndrome presents many challenges, but with love, therapy and assistance, those with the syndrome can benefit from school and community activities well into middle age and beyond. They experience a full range of emotions and show their engaging personalities as they take part in social, educational, and recreational activities at home and in the community.

To learn more about Rett Syndrome please visit:

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